Home Sweet... bed?

You know how when you are out of town and you finally get home there is nothing quite like your own bed to sleep in? On Tuesday our neighbors took me down to my old farm to pick up some more of my things, this time mostly livestock stuff (t-posts ,housing ect). One thing of mine I didn’t get last time was my bed because it’s a loft bed and I just don’t need the “space saving” it gives here not to mention it’s not overly safe for me to sleep in because of the POTS. This time down to Ruby acres I still left my loft bed… but I picked up my mattress. I put it on my bed today and plopped down on it and came pretty close to crying. I had been out of town and my bed sure did feel wonderful! This is the same mattress I had as a little kid! It was on the twin bed Nana put me in once I out-grew my crib! I was “out of town” for going on three and a half years and it sure does feel good to be “home” and in my own bed…

BBQ Goat anyone?

Not sure how Trouble got up on the grill but it was very funny to look out the window and see her there. Not a great pic as it's through the glass and screen but still cute!

Tango - 5-1-08

YAY!

I *finally* see my autonomic doctor tomorrow! She was on medical leave for a little over four months and went through the list starting with the sickest in Feb.! I got a call my her nurse saying there was an opening for me! YAY! There have been some new treatments that have shown promising results since my last appointment with her so we have a lot to go over! We will also talk about having a PORT placed for my iron infussions and to make it easier to give me IV fluids to help control the POTS symptoms since staying hydrated is hard with pots but it is a MUST! There could be lots of changes to my "cocktail" and that is both exciting and scary!

On thursday at 8pm at the dance studio i've been asked to do a demonstration at the guest party. I'll be the only student "performing" that night. I'm excited but really starting to get nervous. Everyone thinks it's funny that i'm going to have to wear a ball gown! lol actually i think it is kind of funny to. The gown is more out of my confort zone then dancing infront of people although that is out of that zone as well! LOL

Busy week! Monday i had a migraine and a dance lesson (not fun, lights and loud music.... to say i was "off" would be a huge understatment.... my teacher is s cool though) Today i see my autonomic doctor, wednesday mom has a dance lesson and so do i, audrey also comes into town :o) thursday i have my demo dance and friday i see my GP! I'm firing my GI doctor since he wont see me anymore anyway! Makes me and mom so mad we had so much respect for him because he could say "i don't know" and he was caring and listened but my case finally got too hard for him and he turned into a really horrible doctor! So my GP has to set me up with a new GI doc on friday.... i hate doctor shopping and meeting new ones! I have to have a GI doc though because of the feeding tube and all the GI problems... i just need to find one that understand that the autonomic problems cause the GI problems so they rarely make sense!

Shane's "trick" and goofy dogs

I love shane to pieces and (don't tell the other goats) he will forever be my special guy but he can get into the biggest trouble! This is a picture of shane (all 150 pounds of him) on an old showerchair of mine trying to get at bits of hay on the pool table... what you also must realize is he had to get over the railing of the deck... get ON the deck and fit through a doggie door that Dean has to duck down to get through! I can't stand over Shane's back even on my tip toes! If we didn't have it on video i wouldn't believe he could do it! Gotta love Shane!

The second picture is from right after christmas (can't you tell from my sheets? LOL) but what made me think about it was dog sitting Tessa and Abby this past weekend. Tessa is a 65 pound lab and Abby is a 48 pound (pure muscle) boxeer/pit mix and that is my *twin* size bed. When ever i watch Tessa and Abby (Abby is actually my dog but lives with audrey) i wake up to two dogs sound asleep on my bed as happy as can be while i'm jammed up to the wall. I didn't get a pic of them in my bed this past weekend but found this one and had to laugh!

the third picture is of Dean on his little "bed" beside my bed where he sleeps most nights looking a little put out that the other dogs were on my bed lol. Dean sleeps on the floor unless i'm really sick and then he gives me no choice then to let him sleep with me... partly because he can over power me when i'm sick lol!

Some random things and pictures

Mom may kill me but here is her picture on her birthday after the "Mini Match" dance thing she did with her teacher Gregory :o)


the duck cake well.... that's finally a picture from March of my birthday cake! I like ducks... also have and no idea why. Even my medical alert is in the shape of a duck.... weird i know :o) but that's fitting isn't it?

i was all excited this time for a cake (i'm not a cake eater.... usually make me sick) because i have waited for YEARS i mean from the time i was able to count and understand to turn 24 years old so that i could have ALL the candles in the candle pack. Now you must also realize the smoke from the candles makes me as sick as the cake itself but that's beside the point lol i was finally able to fullfill that silly childhood dream of having all the candles! LOL

Mowing the lawn...

I'm not sure why i'm always so surprised at how weak i become when i do major labor like mowing the lawn. I enjoy it, Dean bounds around and follows me and the goats wait at the fence for me to toss over the clippings every time the bag is full. I love the sounds of the birds and the smell of the grass... even though i'm majorly allergic to it ;o)

I've always enjoyed doing it, in california, at Ruby Acres and here but i somehow forget how relentless POTS can be. How progressive it can become and how spent my body can get. I guess living with it every day and being so use to everything it brings that i can just forget about it until i try to do something and then it's like a huge slap in the face "YOU ARE SICK" but i do what i've always done and i press on and i live my life! POTS may take a lot away from me but it can't take my spirit or my soul! I will fight it as long as i have to and live my life with no regrets. No one will ever be able to say i didn't try my hardest or do my best!

This year i'm going to save up and invest in a cooling vest i can wear in the summer. The heat just makes me *so* sick and makes it so hard to function i really think the vest will make a difference!